#+title:      Epidemiology of Rare Disease
#+date:       [2024-07-19 Fri 15:10]
#+filetags:   :bib:facebook:
#+identifier: 20240719T151048
#+reference:  orphadata2024epidemio

Doc https://www.orphadata.com/docs/OrphadataFreeAccessProductsDescription.pdf

XML
- PrevalenceList count: total number of epidemiological data for a given clinical entity
- PrevalenceType: can be “Point prevalence”, “birth prevalence”, “lifelong prevalence”,
“incidence”, “cases/families”
- PrevalenceQualification: can be either “Value and Class”, “Only class”, “Case” or
“Family”
- PrevalenceClass: estimated prevalence of a given clinical entity. There are eight possible
values:
o >1 / 1,000,
o 1-5 / 10,000,o 6-9 / 10,000,
o 1-9 / 100,000,
o 1-9 / 1,000,000
o or <1 /1,000,000,
o Not yet documented,
o Unknown
- ValMoy: Mean value of a given prevalence type. By default, the mean value is 0.0 when
only a class is documented
- PrevalenceGeographic: Geographic area of a given prevalence type